It’s Been Awhile

Hey Everyone,

I know it’s been awhile since I last posted. A lot has been going on. But I thought I’d jump on here and give y’all a little update!

The Trigeminal Neuralgia has still been really hard to deal with. I’ve been in a flare and in pain more than I haven’t. Unfortunately that seems to be the theme for this year. In addition to the normal pain I’m used to experiencing, Ive also been getting a burning pain (my doctor calls it Trigeminal neuropathy) that feels almost like the worst sunburn you’ve ever had while at the same time being bitten by thousands of fire ants. Not fun. I’m managing though.

I had a flare up of the neuromuscular symptoms so my neurologist decided to do a complete workup again. Nothing showed on the MRIs of my brain, cervical spine, or thoracic spine. And my nerve conduction study and electromyogram was normal. A lumbar puncture was done and the chemistrys of the cebrospinal fluid were normal but the draining off of some of the CSF resolved my symptoms, which we were not expecting. So right now we’re waiting for the symptoms to come back and we’ll do another lumbar puncture and measure the pressures. We may have found what’s been causing me problems all these years!!

I’m almost done with my paralegal certificate!! Right now I’ve done everything but the final, so I’ve been studying my butt off for that. Once that’s done I’ll start looking for a gig in a disability discrimination/ADA discrimination/advocacy practice (is also be open to working with other discrimination cases as well). I want to work in a practice where I can help make a difference in the lives of people with disabilities.

Well that’s about all that’s been going on. I’m still doing my infusions (thank god they’re still helping) and with the coronavirus I’ve been taking the guidelines seriously and trying to be as careful as possible, since I’m high risk. Hope everyone is being safe!!

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